Engaging People withDisabilities through Social Media MICHELLE (SHELL) SCHWARTZ DISABILITY SERVICES PROGRAM DIRECTOR DIANNE KING DISABILITY SERVICES TECHNICAL WRITER © 2015 THE SAFE ALLIANCE 1 Topic Outline 1) Why explore social media use? 2) What we already knew 3) What we did 4) What people with disabilities told us 5) Recommendations 6) Limitations 7) What’s next? Background SAFEPLACE AND DISABILITY RIGHTS TEXAS – PROJECT PARTNERS SINCE 2006. INCREASING ACCESSIBILITY AND OUTREACH TO PEOPLE WITH DISABILITIES AND DEAF PEOPLE THROUGH BOTH AGENCIES. Why exploresocial media use BY PEOPLE WITH DISABILITIES Project Goal: Gather Information • Determine how social media is used by people with disabilities. • Determine how social service agencies can engage people with disabilities through social media platforms. • Develop next steps plan. What we already knew (WHAT THE RESEARCH TOLD US) Access to Social Media? • Fewer people with disabilities have access to the Internet than people without disabilities – 54% vs. 81%. • At least half of people with disabilities polled reported access to some form of social media. (Pew Research Center, 2011) Facebook and LinkedIn How are people with disabilities using Facebook and LinkedIn? 1.Network 2.Services 3.Outreach 4.Education 5.Advocacy (Baker, et al., 2013) Barriers to Using Social Media • Lack of Internet access. • Both device used and social media platforms need to be accessible. • Lack of available training and experience in how to use the Internet and social media. “Despite these access issues, people with disabilities do use social media as a way to interact and gain information.” (Sweet & LeBlanc, 2013) Abuse and People with Disabilities • Crimes against people with disabilities 3 times higher than against people without disabilities (U.S. Department of Justice, 2012) • Sexual assault 7 times more likely for women with disabilities (Martin, et al., 2006) • 67% of 200 women with physical and/or intellectual disabilities reported lifetime physical abuse; 53% reported lifetime sexual abuse (Powers, et al., 2002) What we did AND WHAT WE WANTED TO FIND OUT What We Wanted to Know 1. Should social service agencies engage and do outreach to people with disabilities on issues related to interpersonal violence? 2. How can social service agencies effectively engage people with disabilities through social media platforms to provide information? Process üDeveloped questions and protocols with DRTx . üTx A&M doctoral students reviewed/gave input. üConducted 5 interviews and 7 discussion groups. üTalked to 51 adults with a range of disabilities. Questions Participants with disabilities responded to six open-ended questions and five multiple-choice questions. Discussion Groups • Adapt of Texas (national disability civil rights group) • The Arc of the Capital Area • Austin Clubhouse (mental health group) • Disability Rights Texas PAIMI Council (Protection and Advocacy for Individuals with Mental Illness) • Easter Seals of Central Texas • Mary Lee Foundation (residential provider) • National Federation for the Blind–Austin Chapter • SafePlace Disability Services Program Advisory Committee • Texas School for the Blind and Visually Impaired (transition-aged youth) Participants Had the Following Disabilities: • Traumatic brain injury • Blind • Intellectual and/or developmental disability • Autism spectrum disorder • Mental illness/mental health • Physical disability • Multiple disabilities What people with disabilities told us… ABOUT SOCIAL MEDIA Do people with disabilities use social media? 94% of those interviewed said yes. Why do people with disabilities use social media? 70% 60% 50% 40% 30% 20% 10% 0% Tokeepupwithfriendsasa Tofollowissues To find out about events Tolearnaboutthings Other social tool What social media do people with disabilities follow? 80% 70% 60% 50% 40% 30% 20% 10% 0% Facebook Twitter LinkedIn Blogs Google+ Other None How often do people with disabilities use social media? 70% 60% 50% 40% 30% 20% 10% 0% Multiple timesaday A fewtimesa week Onceaday Onceaweek Lessthanonceaweek Never How can we attract people with disabilitiesto our social media sites? 80% 70% 60% 50% 40% 30% 20% 10% 0% Send Information to Post information about Have contributors with "Friend" certain groups Include pictures of Get people engaged on disability service diversity disabilities people with disabilities pages with video, quiz or agencies contests What would make you “like” or become a fan or post a comment on Facebook or Twitter? 60% 50% 40% 30% 20% 10% 0% Free events Requests for help Seeing someone Something posted Information that Politics Something of Offers for free you know become by someone you would help you in interest things, discounts, a fan know your life coupons What topics would you be interested in following through social media? 90% 80% 70% 60% 50% 40% 30% 20% 10% 0% Safety Legalresourcesand Healthyrelationships Findinghelpfor Recognizingabuse Howto volunteer Sexuality rights abuseorassault However… • “I don’t like it so much, I like face to face.” • “I’m not really a big fan of technology. I’m an old-fashioned guy, I use cell phones.” • “I don’t know how to access everything or find time to respond to everything.” • “It gets too confusing and time consuming.” Recommendations BY PEOPLE WITH DISABILITIES Overview 1. Accessibility 2. Content/format 3. Outreach Overview 1. Accessibility 2. Content/format 3. Outreach 1. Accessibility • “A lot of people [with disabilities] are poor and do not have resources for computers and tablets.” • “Some people are slow with certain disabilities …explain it slower so they get it and process it.” • “Have more text …that gets that message across in a fairly simple way.” Accessibility Needs People with disabilities need both: • accessible devices platforms • accessible social media AccessibilityRecommendations Ask people with disabilities about the accessibility of your social media platforms and websites. AccessibilityRecommendations (continued) • Balance text and graphics for readers who are blind or have visual impairments. • Provide text descriptions of pictures/graphs. • Keep content brief, to the point, and easy to access. • Format content with clear headings and a topic sentence or summary statement. AccessibilityRecommendations (continued) • Use a variety of social media sites. • Add an open-ended survey link to agency websites for suggested changes from users. Long-term Accessibility Recommendation Because 46% of people with disabilities do not have access to the Internet,* partner with other agencies to provide computer and social media training to people with disabilities. *(Pew Research Center, 2011) Content/FormatRecommendations • “No pictures of people getting checks!” • “Tell people what they need to know to get services.” • “You have 5 seconds to reach someone.” • “Be like an English teacher; give the topic sentence.” Content/Format: Increasing Safety • Address Internet privacy, safety and confidentiality. • Provide an anonymous online discussion area. Content/Format: Relevant, Interesting & Brief • Again, keep website and social media posts relevant, brief and easy to access. • Avoid advertisements, public relations or fundraising photos and topics. Content/Format: Include People with Disabilities “Engage us, not the people who support us, our family, caregivers, etc.” • Seek people with disabilities as regular contributors. • Develop ways for people with disabilities to post, learn and share with each other and the community. Content/Format: Keep it Fresh and Active • Update content at least weekly. • Include art, pictures, poetry, music, inspirational quotes. • Post relevant questions to keep discussions active. • Engage users through contests/promotions. Content/Format: Engage and Educate Topics people most interested in:* • ways to increase safety • legal resources and rights • healthy and respectful relationships • where to find help for abuse and assault ◦ *from closed, multiple-choice question 3. Outreach Recommendations • “I’m really hesitant to vote for something because I don’t want them to spam me.” • “I tend to follow things that I feel will have an impact on me or someone I’m close to for whatever reason.” • “If I’m needing your services, I’m not going to ‘like’ you.” Outreach: Trainings Use social media to promote and provide education and training on disability- specific aspects of abuse and healthy relationships, safer sexuality, advocacy and legal rights. Outreach: Collaboration • Collaborate with disability and crisis service organizations for web content and stories. • Use agency newsletters to promote other agencies. • Provide links to resources, including local transportation options and other websites for people with disabilities. Outreach: Talk to Us • Explore ways to reach people who have experienced trauma and/or have mental health needs. • Provide a confidential avenue for people to learn about services. • Be clear what will happen when you ask someone to like or become a fan of your agency. Outreach: Ask Us • Ask people with disabilities to suggest social media campaigns. • Suggested outreach campaigns: o agency appeals for help o free events o information that could be helpful and/or was posted by trusted source. Limitations • Social media examples • Transcripts • Recruitment • Rapid changes in social media What’s Next? • Develop guidelines for safety with social media. • Engage women with disabilities to submit blogs, articles, video, art. • Disseminate material on project and community websites and social media. Questions? References Asuncion, J., Fichen, C., Budd, J., Gaulin, C., Amsel, R., and Barile, M. (2010). Preliminary findings on social media use and accessibility: A Canadian perspective. Presentation at the CSUN International Technology and Persons with Disabilities Conference, San Diego, March 26, 2010. Retrieved from http://www.adaptech.org/pubs/abPreliminaryFindingsOnSocialMedia Use Baker, P.M.A., Bricout, J.C., Moon, N.W., Coughlan, B. & Pater, J. (2013) Communities of participation: A comparison of disability and again identified groups on Facebook and LinkdIn. Telematics and Informatics, 30, pp. 22-34. References Martin, S.L., Ray, N., Sotres-Alvarez, D., Kupper, L.L., Moracco, K.E., Dickens, P.A., et al. (2006). Physical and sexual assault of women with disabilities. Violence Against Women. 12(9), 823-837. Pew Research Center. (2011, January 21). Americans living with disability and their technology profile. Pew Internet & American Life Project. Retrieved from: http://pewInternet.org/Reports/2011/Disability.aspx Powers, L.E., Curry, M.A., Oschwald, M., Maley, S., Saxton, M., & Eckels, K. (2002) Barriers and strategies in addressing abuse: A survey of disabled women’s experiences – PAS Abuse Survey. The Journal of Rehabilitation, 68(1), 4-13. References Sweet, K. & J LeBlanc. (2013). A qualitative study on social media use by people with disabilities. Presented to SafePlace and Disability Rights Texas by Kayla Sweet and Jennifer LeBlanc, research consultants, under the direction of Laura M. Stough, Ph.D. Department of Educational Psychology, Texas A&M University. College Station: TX. U.S. Department of Justice, Bureau of Justice Statistics. (2012). Crime against people with disabilities. 2009-2011 statistical tables. Retrieved July 10, 2013 from www.bjs.gov/index.cfm?ty=pbdetail&iid=4574