Consent and Healthy Sexuality for People with Disabilities August 21, 2018 2:00 p.m. EDT >> ASHLEY BROMPTON: Good afternoon, everyone. This is Ashley Brompton with the Vera Institute of Justice. This webinar will begin in five minutes. If you have a question or you need any assistance, please send us a message in the question & answer pod below the ASL interpreter. If you would like to download a copy of the PowerPoint you may do so by clicking on the download presentation pod, clicking on the file and clicking download file. Again, the webinar will be starting in just about in five minutes. Thank you. >> ASHLEY BROMPTON: As a reminder the webinar will be beginning at 2:00 p.m. Eastern time. >> ASHLEY BROMPTON: Good afternoon everyone, thank you for joining our webinar today. This is Ashley Brompton with the Vera Institute of Justice. The webinar will begin in 5 minutes. If joining our webinar today. I'm Ashley Brompton with the Center for Victimization and Safety at the Vera Institute of Justice. I would like to welcome you to today's webinar where we will be discussing consent and healthy sexuality for people with disabilities. We are pleased to bring you this as part of our 2018 End Abuse of People with Disabilities webinar series. We are just waiting for one moment while we clear up a captioning issue. We will be restarting momentarily. Thank you so much for your patience. As a reminder, if you have called into this webinar today, please make sure your line is muted. Thank you so much. Again, we will be starting momentarily. Let's go ahead and get started. We have just a few quick logistical items to go over before we begin today. We'd like your assistance in testing the captioning pod. The captioning pod is located in the bottom left hand corner of your screen directly below the Presentation. The words I am speaking should appear in the captioning pod. 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So if you will give us one moment while we make sure that is working for folks. >> This is Sandra with Vera. I just want to point out that we are moving the pods around a little bit based on a participant request to move the captioning pod. So you won't hear any audio at this time. The audio has not gone out. I just want to be clear about that. >> ASHLEY BROMPTON: We just want to make sure for the participant that requested the change in the pod, does this work for you? If you could let us know in the question and answer pod, that would be great. Thank you so much. Let's go ahead and continue now. We apologize again. We try to make our webinars as accessible for everyone as possible. So sometimes we're moving things around. We thank you for your patience and we hope you enjoy the webinar. Let's go ahead and begin. People with disabilities, particularly developmental disabilities, are more likely to experience sexual violence than people without disabilities. Unfortunately, people with developmental disabilities are also less likely to receive information about healthy sexuality and how to identify violence in their sexual encounters. This lack of information contributes to a lack of safety and autonomy. Sexual self-advocacy ensures that people with developmental disabilities understand safe and healthy sexual relationships and the issues associated with safe relationships, particularly consent. To speak about these issues, we are pleased to welcome Katherine McLaughlin. Katherine McLaughlin, M.Ed. is a national expert and trains individuals, staff, and parents on sexuality and developmental disabilities. She teaches sexuality education to people with DD/ID as well as trains them to be peer sexuality educators themselves. Katherine is the author of an agency and school curriculum: Sexuality Education for People with Developmental Disabilities, and has developed two online courses; one to train professionals, Developmental Disability and Sexuality 101, and one for parents: Talking to Your Kids: Developmental Disabilities and Sexuality. Thank you for being with us today and I will now turn the presentation over to you, Katherine. >> KATHERINE McLAUGHLIN: Some up with give me a thumbs up. >> ASHLEY BROMPTON: We can hear you. >> KATHERINE McLAUGHLIN: Good. Thank you. Well, great to be here with everyone, and as Ashley said, I have been an educator and trainer for over 25 years, and my work started off at planned parenthood in northern New England, and have moved into creating my own business, and my business name is Elevatus Training, and my business is to elevate the status of all people so that we view people with disabilities as sexual beings, just like everyone else. So that's the name, is Elevatus Training, because of elevating the status. So my work at planned parenthood, I started to get requests from special educators, and like Ashley mentioned, most of my work has been around developmental disabilities. So I started to get requests on how do ideal with sexuality, and then I started to offer trainings and did a lot of work with ground mountain self-advocates in Vermont where we created this curriculum that Ashley mentioned. It's designed to be team by someone with a developmental disability and a professional and to use people with disabilities in the process of creating the curriculum as well. So we had these requests. I started working with green mountain self-advocates, and my focus is to help people with developmental disabilities, or all disabilities, lead sexually healthy lives, and how I do that and how I approach that is to help others become more comfortable and confident in addressing this topic. So then that will lead to people with disabilities having sexually healthy lives. So for the next hour or so, we're going to look at this idea of it's my prerogative, consent and healthy sexuality for people with disabilities. As Ashley said, in particular, people with developmental disabilities have a higher rate of sexual abuse. I'll give you some of those statistics. But also people with physical disabilities also have a higher rate of sexual abuse than someone without a disability. So for today, the learning objectives are we're going to review statistics on sexual violence against people with disabilities. This is primarily developmental disabilities. We're going to define the current messages and information people with disabilities receive about sexuality. So I will be asking you to chime in in the chat box about what are some of the messages. We're going to explore how these messages and information contribute to a lack of safety and self-autonomy. And we're going to discuss sexual self-advocacy as a way to increase safety and self-autonomy. And then we're also going to review the role consent plays in safe and autonomous sexual relationships. So those are the learning objectives, and we're going to move into people with disabilities and some of the statistics. So starting off with a lack of safety and autonomy. So when we --there was a recent study done by the national developmental disability council where they looked at sexual abuse and the rates of sexual abuse. So most of the statistics come that from study, and people with intellectual/developmental dill D disabilities are at a higher risk of being abused and you may have heard that and are quite aware of that. There has been different statistics thrown out there as far as the actual rate, but in general, people say they're 2.5 to 10 times more likely, and last, I believe it was January, national public radio, did a six-part series on sexual abuse and people with developmental disabilities, and the statistics that they came up with was seven times more likely. You may also --if you haven't heard that six-part series, it's quite amazing. I think it's called "the silent epidemic," and it's about people with developmental disabilities and sexual abuse. Really powerful. So another study is saying 90% will experience abuse at some point in their lifetime, which is such a high, high rate. And 15 to 19,000 people with developmental disabilities are raped each year. In the U.S. So very high rates of sexual abuse. The other thing that this large national study found was that they're more likely to experience violence. So people with intellectual/developmental disabilities are more likely to experience repeated abuse. 49% had experienced 10 or more incidents of abuse. People with developmental disabilities are more likely to be abused if they have profound disabilities and a higher level of support and dependent on services. So very vulnerable. And having personal care by someone else, and that increases their risk. And 96% of cases that were perpetrated by someone the person knows. So very much --not the stranger jumping out of the bushes, which we know is true for everyone, but 96% for people with disabilities. And people with intellectual/developmental disabilities are less likely to report. So when they live in a congregate setting, 85% go unreported. So they live in like a group home or some large area where people are living, all residents in one area. 85% go unreported. And they're also less likely to lead to prosecution --boy, I'm having trouble speaking today --prosecution or conviction. So 70% of serious crimes against people without disabilities are prosecuted, and only 5% of serious crimes against people with disabilities. So these statistics are so alarming, and I've spent some time talking to parents, and they're very, very concerned about this issue, and often will say to me, "I one --it's not wonder if I wonder if my child will be abused but actually when my child will be abused." Parents have also told me they feel really outraged by this --by these statistics and by our lack of outrage as a country. So I think that probably, you know, you're listening to this, you're very committed, you're concerned about all of these things. There are lots of people that don't know about it and are not outraged. So I'm glad that we're all here talking about this. And some of the reasons why these rates are so high are because of that lack of sexuality education. So denied education about sexual health and relationships, and I spoke with a person with a disability recently who said that she was part of the mainstream health class in high school, and this was about five years ago, and when the sexuality started she was moved from the class just for that week or two, for the sexuality unit. So denied education. Denied the ability to make decisions about their own relationships. So that might mean that staff or parents take charge and don't let them have the freedom and autonomy to make decisions. Another reason is negative messages and ableist messages regarding sexuality that are given. We're going to talk a little bit about those messages in a few minutes. And also perceived as less credible when reporting violence. So similar to the information about less likely to report, also less likely to be believed as well. So those are some of the reasons why we have these high rates. Let's talk about messages that you think --these could be verbal or nonverbal messages people receive about sexuality. If you could write those in the chat box, then we can see what kind of messages, whether you have a disability yourself, what kind of messages do you get, or when you are working with people with disabilities. So I'll give you a minute to --so one person wrote "no sex for you." "Are you even able to have sex?" "People with disabilities are asexual, they don't have the capacity to consent." "Not seen as sexual beings." "Doesn't apply to you." "Can't understand it." "You couldn't fall in love with someone." Yes, lots and lots. I don't know if everyone can see all of these coming in. "Sex has nothing to do with quality of life." "There's an increase in shame with issues around sex for people with disabilities." In our culture in general there is a lot of shame about sexuality, but we have this other level of having a disability, and it gives more shame is what the person is saying. "Forced birth control." "Sex is bad." "Not real people with real feelings." Great. So, yeah, lots and lots of negative messages and many people with disabilities will say they get sort of the general messages about sexuality that are --that we all get, whether you have a disability or not, but then they get even more negative ones, and here's some that people with disabilities have said that they've received, and very similar to what you have written here. So they are not sexual beings. They don't like sex. They can't have sex. They should not have sex. They're innocent and childlike and need protection from sexuality. So I'm just going to protect you from it. You're not responsible. You cannot solve problems. You're unable to make good decisions about sexuality. You always make mistakes. And they would not make good parents so should not have children. Someone wrote that as well, should be sterilized. Another one I am seeing down below is they will become rapists. Not only the message of you'll probably be taken advantage of, the other message is you will probably take advantage of someone else. So very, very negative messages about sexuality. And that is a big piece of how we feel about ourselves, ourselves as a sexual being. So what impact, I'm going to have you do this chat again, what impact do you think these messages have on people with disabilities, all these ones we just went through? Feel like they don't matter. There's silence. Vulnerability. Feeling worthless. Dehumanization. Depression and neglect. Fear and shame. Sex is wrong and dirty. Shame and stigma. Isolation. Disconnectedness. Just kind of reading these off as they come in. Isolation. Romantic love does not apply. Powerless. Increased risk. Feel unloved. Not allowed to have feelings excepts ones their caregivers allow. Fear of asking for help if abuse occurs. Low self-esteem. Self-worth. Confused. Yeah. So lots and lots of impact that these messages have, and someone even put "you have no language for sexual and reproductive organs." So that's an impact. You don't have sex education. You can't even identify body parts and know how they work. Feel unattractive, undeserving. No connection. And just some ideas that I have which many have been mentioned already. You know, worried and fearful. A lot of self-advocates talk about being so afraid of relationships because of the messages that they received. So they don't even want to take a chance because they've been given all these messages. Feel that sexual feelings are shameful and wrong. There was a lot around shame as an impact in the chat box. People stopped asking questions and getting the support they need. People kept saying this isn't for you, you know, you're not a sexual person. Then we just stop asking and we give up. Stop reporting abuse because of lack of support could be an impact. Loneliness. And people mentioned in the chat box unconnectedness. And unhealthy sexuality and increase of abuse. So these messages and the lack of sexuality education put people at risk and have a huge impact on their self-esteem, their lives, their relationships. So one tip that I give people is to give positive supportive messages about sexuality and healthy relationships, that that's something you can do really easily, in our work, in our lives, in our own minds give positive supportive messages about sexuality. So that's the impact. And then I wanted to talk a little bit about sexual self-advocacy. Because it is a piece of --you know, it's a tool, it's a concept for all of us to think about in working with people with disabilities. How do we teach sexual self-advocacy, a tool for safety and autonomy? Okay. So I'm just looking to see if anything has come up. Okay. Good. So sexual self-advocacy, so a person with a disability --actually, green mountain self-advocates have defined sexual self-advocacy as speaking up for yourself sexually, getting information, taking a stand, saying to whomever, "This is my choice," stating your sexual limits and desires with your partner, respecting others' limits and desires, starting to do what you want with relationships. So this idea of sexual self-advocacy is really kind of an interesting one because in the general population we assume that someone will eventually be in a sexual romantic relationship. We might disagree on the age that that should start, but we do assume that that will happen eventually. But with people with disabilities, they often have to advocate for even the right to be in a relationship. They have to advocate for privacy. They have to advocate for sexuality education. So there is more to advocate for around sexuality for someone with a disability, and you know, we hear people say that it's harder to be a sexual self-advocate than to be a self-advocate. So someone with a disability wants to get a job, or wants to live on their own, and people jump right in and help them and work at these goals. There's no hesitation. But when someone says they want to be in a relationship or they want to start dating, you start to get [ INAUDIBLE ] and so [ INAUDIBLE ] sexual self-advocate. Because people get really nervous about it. So sexual self-advocacy means speaking up for relationships, privacy, sexual education, but also within a relationship, how do you communicate what's okay for you, what is not okay. It's sort of twofold. The need for sexual self-advocacy, it insures individuals with disabilities have the tools and information they need to make safe and healthy choices. [ INAUDIBLE ] good relationships and bad relationships. So they understand about abuse and when things are unhealthy and when things are healthy. And they also understand consent and we're going to talk quite a bit about consent and go from there. So how are we doing --I keep seeing some messages about sound. Are we okay? Can people hear me okay? >> This is Sandra, Katherine. I think that some issues are with the audio and people are having to log back in and some people are having to call in over the phone. But also, Katherine, just on your end, every once in a while you are dropping off and becoming a little bit inaudible. So if you could just make sure you are keeping the phone close to your mouth I think it will help with the sound coming from you. Some of it is the system but there is a little bit of it coming from you. >> KATHERINE McLAUGHLIN: Okay. Great. All right. So hopefully this will get better for everyone. So we're going to move into helping people become sexual self-advocates. So we're going to focus on really three areas today, and there's lots of areas and topics to talk about, but how can we help people become strong sexual self-advocates? So the first piece is knowing about human sexual development and the need to teach healthy sexuality and I'll talk about some of that, and we have already talked about that as well. But also we're going to discuss issues of consent, and there's two pieces there, giving and getting consent, and also one's ability to consent. So we'll talk about both of those. And then I'll talk about a few tips and some resources for communicating about sexuality in relationships. So the importance of teaching healthy sexuality. It demonstrates that all people are sexual beings, not just those who are non-disabled, heterosexual, young, et cetera. So in many of my trainings we have this box and we say who do we consider sexual in our culture and it's heterosexual, non-disabled, young, thin, they look like Brad Pitt and Angelina Jolie. Just certain people. And much of the work of teaching healthy sexuality is opening up that box and those who are outside of that box are also sexual beings, whether they're overweight, homosexual, bisexual, have a disability, elderly, teenagers, all people are sexual beings. When we teach healthy sexuality, it gives positive messages, which we talked about, but sometimes people will just do abuse prevention for people with disabilities because there are such high rates and forget there is also this whole other piece of being in relationship and being --and starting to date and how do you flirt with someone, and so sometimes the messages we give are very much focused on abuse prevention. So we want to give positive messages. And that's what teaching healthy sexuality does, it helps people with disabilities be sexually healthy in relationships that are positive and enriching. So what is a positive relationship? How do I support my friend? Also includes social skills training. So how are you part of a community? What is public and private? What behaviors are okay in public? What are okay in private? And it also reduces unplanned pregnancy, sexually transmitted infections and sexual abuse. One thing that isn't listed here, it also prevents loneliness when we know how to be in relationship with people in our community, having friendship, having sexual relationship. We're less lonely as well. So it's so important to have healthy sexuality and have it be sex positive, inclusive of all sexual orientations and gender identities. So that's the first piece about helping people be strong sexual self-advocates. Now we're going to talk about consent, and like I mentioned before, we're going to talk first about, well, what is consent? You know, how do you get consent? And go from there. So in order to be a sexual self-advocate, a person with a disability must have a firm understanding of consent, right? So, knowing what consent is, asking for it, giving it are important skills to have to be a sexual self-advocate. And another thing that they should know is the person is always allowed to say yes or no to sex and self-advocates need to know they have a choice. So we want that to be clear and it's an important piece of being a sexual self-advocate. And there's definitions of consent. So we must ask people before we engage in any kind of sexual behavior with someone, both people must say "yes." Sexual acts should feel good to both people. A person can say "no" at any time. Giving consent once does not mean the answer is always "yes." And remember, if you're not sure, ask a person. So there's also more about consent where, you know, we really are asking for two things. We're asking for someone to say yes, but we also want to make sure it was freely chosen. So I could hold a gun to your head and get you to say yes, but that wouldn't be freely chosen. So consent involves two yeses. One is the person said yes, and the other is that it was freely chosen. So there can be no pressure, lies, force or threats. So things like, if you don't have sex with me, I'll break up with you, if you don't have sex with me, I'll tell everyone that you did, I love you and will never leave you, even though that person doesn't feel that way, they're lying to get them to do this, or holding a person down and using a weapon to make them have sex. So it's twofold. You need to get two yeses, and I'll show you here. First, and this is something we want to teach people with disabilities, did the person say yes? Yes, they did. Was it freely chosen? Yes. That equals consent. Did the person say yes? Yes, they did. Was it freely chosen? No. Then it's not consent. And did the person say yes, no, they didn't. And was it freely chosen? No. That's not consent. So we want to get two yeses. Those are important for people with developmental disabilities to know about. One important piece about that is people with disabilities often to be compliant to just say yes even if they don't want to and go along with it. So we want to make sure that they know about being able to say no and yes, and whether it's freely chosen. So the legal definition of consent. So there's no one definition of consent. Each state sets its own definition and its laws. There are some features that are very similar to most of the state laws. So freely giving consent. So very similar to what I was just talking about. Offered the person --offered of the person's own free will without being induced by fraud, coercion, without violence, free of violence. So freely chosen. Laws use that as a feature in their creation of the laws. And then the capacity to consent. Did the individual have the capacity, the legal ability to consent? So those are questions that come up in the laws. So just a few other things and then I'm going to give you a comparison of two different states and the difference in their laws, and what I would advise is that you look up your consent laws in your state to really understand what your state says. So language in statutes could inadvertently categorize people with disabilities as incapacitated or mentally impaired. So that's language that's used. And it's often used when talking about people with disabilities and consent. I'll go through some of this as well. Some of the definitions. Under consent based statutes, when a person is considered mentally impaired, it is deemed that there was no consent. So if a person is considered mentally impaired, then they -they're actually viewed as not being able to consent. So there was no consent. So they couldn't even give a yes. But are people with disabilities actually incapacitated or mentally impaired and what's the criteria? This is the issue many people are upset about with consent laws, this assumed mentally impaired, that just because you have a disability that you are mentally impaired rather than assuming that people can consent and then we need to look at those who can't. So that's --and just the language itself that is so negative. Right? Mentally impaired. The issue arises in criminal cases, too, especially when a guardian or parent believes there was sexual assault. So sometimes parents believe there is a sexual assault and then that's when issues --you know, a lot of the criminal cases start, because people are worried they didn't consent. And there's so many messages about sexuality that we talked about, but also one is that, for example, is a stereotype that women don't want to be sexual, so many times when someone -when a woman is sexual, we wonder if she was taken advantage of. So just to tell you --I'm going to compare the Tennessee laws, and I'm not a lawyer, so I don't have all the ins and outs, but I have sort of a general sense of what these laws are telling us. So there is a lack of consent if the person engaged in a sexual act with another person by forcible compulsion or with a person who is incapable of consent, so similar to what we were saying before, that because he or she is physically helpless, mentally defective or mentally incapacitated. Such lovely language. So just to break those down. So mentally defective means that a person suffers from a mental disease or defect that renders the person incapable of understanding the nature and consequences of a sexual act, or they're unaware a sexual act is occurring. So many times people will be put under this in the law, someone with a disability, incapable, because they suffer from a mental disease or defect. Mentally incapacitated means a person is temporarily incapable of appreciating or controlling the person's conduct as a result of the influence of a controlled or intoxicating substance. Right? So this is someone who is not able to consent because they're under the influence of alcohol or drugs. And then physically helpless means that a person is unconscious, physically unable to communicate, a lack of consent or rendered unaware that a sexual act is occurring. So these are some of the terms that are used in the Tennessee law, and it's saying any of these things that are going on, these people are not allowed to consent. Now, if we look at New York, and maybe some of you are from New York, there is a state --the state law in New York deems that all people with intellectual and developmental disabilities are considered nonconsensual. So if you have a developmental disability you are not able to consent. And in order to be deemed consensual, individuals have to pass an assessment. So they take a test or a survey. I just saw in the chat box, "That's terrible" somebody wrote. So this assessment --a lot of it is on sexuality information, not on whether the person has the ability to make their own decisions. And we don't --you know, of course, we want to protect people, but lots of people can make decisions, many people in the general population didn't have to take a test in order to start being a sexual person. So in New York, this is what --it's very controversial in New York. Some people think it's a good thing, and others think it's terrible, like Grace wrote in the chat box. So find out what your state laws are and what that means, but I think what's really important is that we make sure that people can give affirmative consent, and in some states it requires verbal expression. So what about somebody who uses American Sign Language --people aren't always --it's not always possible for someone to give verbal consent. So that's another piece of some of the laws. So we also want to talk about, well, how can someone give consent, verbal consent, if they're nonverbal? Right? So positive body language. Leaning in. Smiling, pulling you closer. Sign language, yes. Nodding, yes. It's not a verbal consent but it's giving consent. And negative consent might be pulling away, crying, not responding to your touch, turning his or her face away, arms wrapped around the body, sign language no, shaking head no. So there are ways to give consent that aren't verbal but sometimes state laws require verbal consent. So finding out about that as well. And the things that we want to consider is, really, the relationship and the power dynamic. So sometimes it will come up like can someone without a disability be in a relationship with someone with a disability? And, yes, they can, if we're treating them as equal partners and we have a positive relationship. Of course. But if it's a service provider or a medical provider or a person of authority, then that's a different power --that's a power dynamic where you can't be in a relationship with someone with a disability. And the other thing is we don't want to place the burden on the person with the disability to prove that they have the capacity to consent. So this presumption of competence. And many people will say it's similar to the criminal justice system where we say you are innocent until proven guilty. You are competent and able to consent until proven that you can't. So what we really want is this presumption of competence rather than looking at, well, you have to prove that you're competent and --the message we want to get out there is that all people are competent unless we think otherwise for different reasons. We also want to try to prevent unnecessarily invasive [ INAUDIBLE ] so getting people into the court system and being part of this criminal justice system. So we want to avoid that at all costs. And I think --let me just take a quick look at the time. A couple of other things, just some tips I wanted to give you, and actually I think maybe what we could do right now is get some questions --if anyone has any questions or comments they want to make, and I tried to watch the chat box, but it goes fast, and it's hard to catch everything, but does anyone have a question or a comment before we move into tips and resources? So did the Deaf and hearing are in a relationship, hearing does not know sign language --I'm not sure if this is a question. Then use text to communicate. I am not sure if people are talking to one another. That might be what it was. They're responding to a different one. Okay. So does a text-to-speech device count as verbal consent? Great question. I don't know the answer to that. I would assume it did, but, again, I don't know. So does anyone know from Vera whether a text --I lost the question. It keeps going so fast. Yeah, does text-to-speech device count as verbal consent? And then someone said depending on what situation you are in. >> This is Sandra from Vera. I would say that --I'm with you, I don't know that that has been litigated at this point. I don't believe there is any case law out there at this point that would have made a definitive decision about that. >> KATHERINE McLAUGHLIN: Okay. So we don't really know. I just want to see what else was here. as far as questions. Okay. Right. If the law says they cannot give consent, will they actually be prosecuted? I keep losing the --all right. I think what we want, help me out with this, have peopling the question and answer, and then that might be better? Because the chat just keeps going. Does Vera have somewhere where I can see the case law around consent, or do you, Katherine? I mean, I have the --I have some around New Hampshire, but not the case law. I could definitely get it for you. And I have some --I'm in New Hampshire, so I have more around that. So between myself and Vera, we could find something for you. So let's --I'm going to go over here. How do you talk to students about the laws they --that they say they cannot consent to sex? How do you talk to students? Yeah, good question. I think what we want to do is tell people what the laws are, and whether they have a disability or not, and then we, you know, want to talk about what that means. I mean, I focus more on students that are in my class and they are participating in the class and make lots of decisions --ah, now I can see the chat box better. So I think what we want to do is --that's the tricky part is, if a state says you can't consent and yet you feel that someone is able to, I don't think that people --I mean, I think what might happen [ INAUDIBLE ] and I think what we struggle with this topic [ INAUDIBLE ] there's the laws and then --then there is the reality, and people with disabilities consent all the time to sexual relationships, and so how do we manage those two opposing things. Now, even someone without a disability might consent to sex before they are legally able as well. So --yeah. I think this is where it comes out in the court systems more, but really talking to young people about what consent is and going from there. If a state law says that people --okay. What if a state law says people can't consent, people with disabilities can't consent? Like I said, people consent all the time, and so how do we protect people with laws but also give them the right to be a sexual person. That's where the rub is. That's where it gets really tricky. Okay. People take part in unsafe sexual acts to address their need for -this is somebody's comment about [ INAUDIBLE ] some people [ INAUDIBLE ] sexual acts because no one is talking to them about, assuming, protection and consent and end up being in unsafe situations because of the lack of sexuality education. Let me just look through here and see what else is here. All right, legislation is always going to be way behind technology --there is always a sticky catch-up because court cases take years to make it through the system. So, yeah, we are talking about a system that takes a lot of time and we don't have all the answers and there is a lot of gray area. It's very difficult to prove consent is any capacity, typed or spoken. This sounds so discriminatory. Yeah, that people don't have the right to consent is extremely discriminatory, if that's what you are referring to. I can type independently, but that is a great privilege. So this is just talking about people having the right to consent and speak up and type, text using a text device. So do people with disabilities have proxy to obtain consent for sexual relationships or what would legally categorize consent for those people? Do people have a proxy --so we sort of talked about this depending on the state, like New York you have to pass this assessment, but other states, you're going --it's going to be more around some of the language like the Tennessee laws. I think that might be all at this point --oh --okay. Wait. There's more. Hold on. Are there specific statistics of sexual abuse from someone in power against one with --with an intellectual disability? Are there any statistics of sexual abuse --oh, so someone with an intellectual disability against another with an intellectual disability, and I don't believe there are --I don't know of any statistics around that. I'm sure it happens. Right? But I don't know if there are any statistics around that. Great question. We can certainly look into that. Let me see what else we have here. How can a person with a disability or different categories of disabilities legally consent to have a sexual relationship or do they have a proxy for that? I think we have been talking about that. Could you discuss concerns around power dynamics besides obvious situations. I think what we have to do is talk more about what's a healthy relationship and what's an unhealthy relationship, and just was you have an unhealthy relationship doesn't mean it's abusive. But it could get healthier. So I think just talking more about that. Is there respect? Do you have choice? Or does your partner make all the decisions? And really focusing on the relationship itself and power dynamics. As we all know, and I know many in the audience are from domestic violence agencies, you know, not just disability, they're people with imbalance of power in a relationship, and so those are always fairly tricky how we're going to talk about this. What if a person has in their individual support plan that they want to know more about sexuality? Should that be honored? You know, it's interesting, because we're also talking about guardianship laws, too. So sometimes people, guardians, maybe their parents or maybe they're not their parents, feel that they can decide whether someone with a disability can attend a sexuality education class. And, really, education, that's not a place where guardians have power, and oftentimes guardians think they have more power than they actually do. So I think it should be honored, absolutely, and we also want to support parents in talking to their own kids about sexuality and when we --sexuality education needs to be sort of values free. What I mean by that is, as a teacher, you don't want to share your values. Because sometimes parents don't want someone to attend the class because they're worried you're going to tell them what's okay and what's not okay. So we're going to --so you want them to know that the sexuality education class that's available, the person is not going to impose their values. They're going to talk about common values, like respect and consent and listening to a partner, but they're not going to say whether someone should be sexual or not. So I think that can help parents when they're concerned about sex education, but if it's in somebody's support plan, I think that absolutely should be honored. Okay. So let me see what we've got for --okay. 3:00. I'm going to keep going through a few of these questions. There are so many questions here. [ INAUDIBLE ] guardianship or power of attorney affect [ INAUDIBLE ] in regards to sex? My understanding is that guardians do not have the power to decide whether someone can consent to sex or not. But depending on the guardianship laws in the state as well, there may be some --there might be --like different states have different categories and they're checked off of what you have control over. So maybe it's finances or health, and sometimes guardians will look at the health and feel like, well, this is a place where I can control or intervene around consent to sex. But my understanding is that a guardian cannot stop someone from consent. And we may not even have cases that have gone through the court system [ INAUDIBLE ] that can tell us the answer to that. So it's, again, more gray area. Let's see. How do you prove consent, is it verbal and becomes he said/she said situation? You know, that's true anywhere, right, when it's a he said/she said. How do we prove that somebody consented? And I just talked to a developmental disability agency recently and this is the exact situation that's going on right now, and what do you do with that situation? And that's true for anyone without a disability as well when it's a he said/she said. But just because somebody has a disability doesn't mean they shouldn't be believed. Right? So that is an issue are we not assuming they're credible. But just making sure we're in tune with that and making sure we're not assuming that someone is not a credible source. Okay. In New York they have to have proxy --is that what you are saying? I'm not sure what you mean when you say "proxy," but what I know is you have to pass this test to be deemed consensual, if that is what you mean. Litigation concerning facilitated communication both exonerating and accused and prosecuting those that they said they had consent. So it sounds like there's some litigation concerning facilitated communication. I don't know about that specifically. What about people who need communication support, can they consent? So I think that's something we want to find more about. Depending on your state law, does it have to be verbal, and what does verbal mean? So we'll have to work more in --more around the laws in changing the laws so that you can use communication support to consent. As an educator can I get trouble teaching people with disabilities about consent and sexuality? Yeah, I mean, unfortunately we all have to be really careful, right? I don't believe you're going to get in trouble, but as an educator -a special educator, depending on the school system, I would check in with administration and say, I think that we need to teach consent and sexuality to our students with disabilities and, you know, not doing it puts them at risk, and we want them to have safe and autonomous sexual relationships, and education is important. The other piece to pull in is what are your state laws around sex education? And oftentimes people with disabilities are not given that the education state laws are expecting all students to get. So that's another thing to look into, what are the laws regarding sex education in your state and is there a requirement for all teenagers to get sexual and reproductive health education? If true, are students with disabilities getting that? And also if you have parents that are advocating for more sexuality education in the schools, that's very powerful. And getting them to talk to administration and say --or if they say, yes, I'm really interested in this, that you use that as a selling point to the administration. But there are lots of schools that are teaching sexuality education to students with disabilities. But like I said earlier, then there's also many early that put them out of the sexuality units. Proxy is a person who is legally authorized to make all decisions. So it's similar to guardian, someone wrote in. A proxy is a person who is legally authorized to make all decisions for a person with a disability. Yeah. So I think someone was asking about could someone else give permission and that they would need a proxy. Yeah. And I'm in Pennsylvania and the IST is in agreement between the individual and the state [ INAUDIBLE ] provided to support them to have the life they want. Would that be some type of consent? I'm trying to understand that. Providers -right. Okay. So --great. What's the life that they want to have and how are we supporting that? And would that be some sort of consent as far as it's this --in the ISP there is this agreement between the individual and state saying that they should have the life that they want. I would say that that does mean that they can consent, but I don't know that everyone would agree with that. And can people be in psychiatric hospitals consent or are they all considered mentally impaired? Another good question. Right. I don't know. I have work [ INAUDIBLE ] I don't really know the answer to that. But I think this is bringing up a lot of questions, and I'm sure Vera will take some of these as next steps. All right. So let's see. I'm looking over in the chat. I think I've probably covered everything. I'm just going to do a little bit more around --okay. So someone said I would like to hear more about your experience that sexual self-advocates and co-training. How do you recruit, train, et cetera? Yeah, let me tell you a little of that. So the last training that I did was in Michigan, and it was a developmental disability council in Michigan. They brought together 40 different people about 20 self-advocates and 20 professionals, and they received my curriculum, and we did two days of training around what is --makes a good sexuality educator. So I think the developmental disability council had a lot of connections with self-advocates [ INAUDIBLE ] in your state might be a self-advocacy movement, peer mentors, meaning that they talk to other people with disabilities about how to advocate and change policy. So there was already kind of a pool of people that they could really draw from. I think [ INAUDIBLE ] any advocacy groups in your state would be a great way to [ INAUDIBLE ] recruit and train people. And the curriculum that I wrote is [ INAUDIBLE ] for someone with a disability and some -and a professional to team teach. So it's well scripted for someone with a disability, and it is --there's teaching tools and handouts that can be used and reproduced for classes. So it makes it an easier --easier to get started. So that's how I've done it, is worked with the state, and the hope in Michigan is that there will be teams all around the state that can [ INAUDIBLE ] sexuality education for people with disabilities. I'm looking at something here. It says as a sexuality educator it's hard to convince any parent that their child is a sexual being. And in Massachusetts we've developed guidelines for rape crisis centers on working with survivors who have I/DD and includes a review of some of the laws. That's a helpful resource to know about, and it is hard to convince any parent --it's difficult for us to think about our children growing up and becoming sexual beings, and it's hard to let go, really, right? So not just people without disabilities, but people with disabilities and without, it's hard for parents to let go. It looks like someone posted the guidelines that were just referenced in Massachusetts that might be helpful for people. So let me just finish up with my last bit around tips and talking a little bit more here. So looking at the tips and resources, and we talked about giving positive messages already, but we also want to use inclusive language when we talk about sexuality. So we want to say "partner" versus "do you want to have a boyfriend" when you are talking to a female. We also --there's been a movement recently for people who are transgender around being more accurate in how we describe body parts as well. So, for example, rather than saying a man's penis, we say a person with a penis, because they might identify as female or male or trans. So we're really trying to use language that is more accurate. It can be a little more confusing for people, but it is more accurate. So I just revised my curriculum and the anatomy chapter lesson and did all of this around a person with female sexual parts and a person with male sexual parts as a way to be more inclusive of those who have female sexual parts but feel male and vice versa. So using inclusive language. And I think we put a lot of pressure on ourselves to know all the answers about sexuality, and it's okay not to know everything, and it's okay to answer the question later. So similar to what we did on this webinar, you know, we may find out more information for you. It's okay not to know everything. It's okay to feel embarrassed. You know, I didn't ask any of you the messages you received growing up about sexuality, but in general when I ask that question of people on webinars or in audiences, most people say they didn't get any messages, or they got negative messages, and when I asked a room of 100 people, raise your hand if you feel that you got positive messages about sexuality, about five people raised their hand. So the good news is 20 years ago no one raised their hands. So now there's five people out of a hundred. So we are making progress but change is slow, as I'm sure you all know. Also when we're talking about they will these sexuality, we want to give facts and a range of opinions, unless you are the parent. So, parents, you want to give your values and tell your child what you think about relationships and --but as a professional, we want to give facts and you can say some people think this, some people think this, what do you think? And give it back to them. And then the other thing that's really getting sort of posted from different resources that can really help, help you be more confident around this topic. So just to tell you about some of the things, and Ashley mentioned it early on as well, but I have this curriculum that's 22 lessons. It covers things like public and private and types of relationships and how you touch in those relationships as well as friendships and anatomy and sexual health and relationship health and consent. So it's got all the [ INAUDIBLE ] and what's really important, too, and this might come up in your conversations with parents or anyone that someone with a developmental disability might be described in a way that they might say, well, yes, they are 20 years old, but their cognitive age is 5. And what we really want to do is focus on the biological age, not the cognitive age. So how you're going to teach will be different but not what you teach. So someone without a disability that's 20 years old needs the exact same information as someone with a disability who is 20 years old. How you teach it is going to be a little different because it's going to have to be more concrete. And then someone just said can you tell us about how to get these lessons? So [ INAUDIBLE ] you could order the curriculum - >> Katherine. This is Ashley. You broke up when you were giving information about how to access the curriculum. I want to make sure people know how to access that information. >> KATHERINE McLAUGHLIN: Sure. So on my website Elevatustraining.com are all my education materials and information about trainings. So the 22-lesson curriculum can be purchased on that website. So you can go on there and find out about that. The online staff training is also listed there if that's something that you're interested in. And it's unlimited use. So if an agency buys an online staff training, they can use it over and over again. And same with the parent workshop. The staff training is six sessions, and the parent is four sessions. I also provide live trainings and in services. So sometimes I'll go into an agency and do an in-service training, but I also want to share with you on this last page, I have --I host a training on becoming a sexuality educator and trainer, and we have three trainings this fall, the one in Worcester Mass is sold out at this point, so there aren't any more spots in that one, but we are starting a waiting list. And then we'll have one in Atlanta, Georgia, and Denver, Colorado, and this training is --the purpose of it is so that people can do this training and they leave with a sexuality education curriculum, they leave with a staff training curriculum, and a parent -leading parent workshop curriculum. And so the three days are focused on being a good sexuality educator, how do you use the curriculum and then people go back to their agencies and they're sort of the new sexuality educator and trainer for the agency. We've had four trainings so far. So we have about 140 people that have been trained already. And the hope down the road would be that we might do something more of a train the trainer so other people can lead these three-day workshops down the road. So someone wrote, will these trainings be offered in New York, too? We don't have any plans for it at this time. What we're willing to do is if you feel like, I can get my people together in New York, we can come to New York and do the three-day training. So reach out to me, email me. I think in the last slide has my email address, kath@elevatustraining.com. And please come to Anchorage. I would love to. I've never been to Alaska. Again, if you feel like, okay, you could help get the people [ INAUDIBLE ] I would be happy to come and do the three-day training and provide that for your community. Okay. Anything else? Any last questions, thoughts? Great. So someone said they are going to do their best to try to get people together. So we'll talk. But I think what you are identifying is --someone just asked, is it evidence-based? That's a great question. I think you're referring to the curriculum. I'm assuming, but that may not be right, but the curriculum is not considered evidence-based at this time. I am having a student work on it this fall, and my understanding is that it's actually evidence-informed. So there --there's no research on the actual curriculum, but that it's modeled after other curriculum that have been researched. But we have to still do the process and prove that. So it is not considered evidence-based at this time. Is there lessons for people with disabilities? All the lessons are for people with disabilities. It says, where can we find out about trainings? Elevatustraining.com. All the information is there to find out about. And you can email me, too. I'm happy to respond to you through email if you have more questions and you just want to start talking about how can we get some training in your area. Anything else? Somebody asked about recommending online resources for people with disabilities, and it's interesting, the office of autism research is working on a website currently, and it should be out in the next month or so. I haven't heard lately, but that might be a really good resource for people with disabilities when that eventually comes out, but there isn't a lot online for people disabilities. I mean, people with cognitive or developmental disabilities there isn't a lot, but there is more around disability, and one particular website that I'm aware of sexualhealth.com or dot org. There is also a website titled ComeAsYouAre, which has a lot of—has a lot of resources around adaptive sex toys and that kind of thing. We didn't even talk about that at all, like, you know, someone with a physical disability, what kind of adaptations might need to be made. Somebody just asked if there an email list? Yeah, if you go to my website you can sign up for an email list, and I do it --every two weeks I do an E newsletter with some different content and information about sexuality and developmental disability. And as far as how many people do we need to have a three-day training, good question. We're sort of trying to sort that out right now. Most of the trainings have 40 to 50 people, but we could probably do something like 25 or 30. But get in touch with me and we will talk about what might be possible. I didn't hear you. Could you please type in the question box? It would be great to gain access to online training materials to share with people we serve. Yeah. But, again, the curriculum, if you want to teach classes, it also has a manual on how to set up a group and what makes a good sexuality educator. So a lot of agencies will just buy the curriculum and then use it and have --do it --do sexuality education class in their agency. So I think that's --I'm just looking to see if there's any more --someone asked if my training was empirically valid. So one thing that I am doing with my trainings is I am asking people to self-assess their level of competence before the training and then after the training, and I'm going to also follow up, you know, six months later and see where they rate themselves as well. But after the three days usually their average is around about 6.5 in people's confidence for leading sexual education classes, leading parent workshops and leading staff training, and at the end of the training, people rate themselves and the average is around 9 as far as confidence. I'm not sure if you feel that is valid enough but we're definitely seeing more of an increase. And also with the three-day training, I do a certificate of completion. So you're not certified as a sexuality educator, because the only agency that does that is AAECT, but I give a certificate of completion. And so after the three days people take an online assessment and answer questions, and if they pass, they get a certificate of completion. Because that's one of the [ INAUDIBLE ] people --people have --people feel that they don't get the credibility. People say, who are you to teach sexuality? And so this helps give them a little more credibility that they were able to attend --it's not just a certificate of attendance; it is a certificate of completion. So they passed a test basically as well. I see someone talking about the center for human development and Julie add continue sun. She also has a curriculum as well, friendship and dating curriculum. I do some work with her. Another thing to tell you about is working with Julie on this is we're doing these sex talk webinars for people with developmental disabilities and I can send you information on that as well. I can share it with Ashley and she can share with you. There will be one in September. The last one was in June and we talked about relationships. And the next one will be much more around sexual acts and how to be safe and --so we will --I can get you that information as well. And we have myself and someone from Georgetown who does a lot of sexuality education and then someone from Green Mountain Self-advocates. He is a self-advocate and has autism and he is one of the panel for the sex talks. So I will Deaf --someone said they would love information on that. I will pass that on to Ashley and I think she is going to send out an evaluation at the end and could give you that information as well so we can get that to everyone. Whew! >> Thank you so much, Katherine. We really appreciate this. For those of you who are requesting resources or asked a question that Katherine was not able to get to, I do go through and Mike sure any question not answered during the session will be answered via email. So I will reach out to Katherine and get any additional questions and resources and pass them on to you. And thank you all for participating in today's webinar. I'm going to really quickly share the screen for you all. Finally, we ask that you complete a brief evaluation, which you can do by either clicking the link here in the PowerPoint, or the webinar survey link that you see on the screen below the PowerPoint. If you just click the link and click browse to, we would appreciate it if you could share your thoughts on this webinar so we can continue to meet your needs in future webinars. For those of you have interested in downloading a transcript of the webinar you can do so by going to the captioning pod and clicking the button that says "save." I will leave the webinar open for a few minutes to give you an opportunity to download this. If you have questions or concerns, please feel free to contact us at cvs@vera.org. Thanks again and have a great afternoon, everyone! For those of you still on the line, other link that we have is a really great video that highlights a relationship between two individuals that have Down's syndrome and the --sort of the really special and great relationship that they had and talking about the importance of having healthy relationships for people with disabilities. So that is linked as well. Unfortunately Katherine --we were unable to get the technology to cooperate. But please feel free to click on that link and watch the video. That will also be linked in the evaluation and follow-up email you get. So, again, if you have the opportunity, we encourage you to watch that as well. Thank you, Katherine, for the reminder. >> KATHERINE McLAUGHLIN: Sure. Thanks for the opportunity to be on this webinar.